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Post by 1dave on Aug 30, 2015 10:44:23 GMT -5
My wife has suffered from this for over 30 years. For hundreds of years people that had it were told "It is all in your head," or "you are just lazy." Lucky for her, we now have a label. Unlucky for her, once we have a label we assume we know EVERYTHING ABOUT IT. We don't.There are hundreds of different kinds and thousands of different symptoms, along with all kinds of guesses as to how to treat it.
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Deleted
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Post by Deleted on Aug 30, 2015 14:25:46 GMT -5
The term was originated by physicians who had patients that they could not diagnosed wi known conditions. In the physical therapy world, the patients were mocked.
With thousands of symptoms, it cannot be one thing. It must be many things. So I guess now we are saying the term fibromyalgia is the blanket term for any of thousands of possible conditions? Not very useful term is it?
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Post by vegasjames on Aug 30, 2015 18:07:25 GMT -5
Fibromyalgia is a syndrome, which is a group of symptoms, not a specific disease. Syndromes can therefore have more than one cause.
What is known about fibromyalgia is that it is in part due to a lack of muscle adenosine triphosphate (ATP), which is why magnesium malate is one of the main treatments. Bot magnesium and the malic acid it is bound to increase ATP. Same reason it can also help with other muscular ATP deficiencies such as rhabdomyolosis from the use of statin drugs. CoQ10 is often recommended for rhabdomyolosis as well since it also increases muscular ATP.
Fibromyalgia has also been linked to low serotonin, which is used throughout the body, not just the brain. The body has 18 different serotonin receptors throughout the body regulating various things. Serotonin can be elevated with the herb chamomile, which is the highest herbal source of the serotonin precursor tryptophan. Or you can find 5-HTP in health food stores, which is an intermediate between tryptophan and serotonin.
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Post by 1dave on Sept 1, 2015 17:36:18 GMT -5
The term was originated by physicians who had patients that they could not diagnosed wi known conditions. In the physical therapy world, the patients were mocked. With thousands of symptoms, it cannot be one thing. It must be many things. So I guess now we are saying the term fibromyalgia is the blanket term for any of thousands of possible conditions? Not very useful term is it? Labels have good and bad news.
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Post by 1dave on Sept 1, 2015 17:36:50 GMT -5
Fibromyalgia is a syndrome, which is a group of symptoms, not a specific disease. Syndromes can therefore have more than one cause. What is known about fibromyalgia is that it is in part due to a lack of muscle adenosine triphosphate (ATP), which is why magnesium malate is one of the main treatments. Bot magnesium and the malic acid it is bound to increase ATP. Same reason it can also help with other muscular ATP deficiencies such as rhabdomyolosis from the use of statin drugs. CoQ10 is often recommended for rhabdomyolosis as well since it also increases muscular ATP. Fibromyalgia has also been linked to low serotonin, which is used throughout the body, not just the brain. The body has 18 different serotonin receptors throughout the body regulating various things. Serotonin can be elevated with the herb chamomile, which is the highest herbal source of the serotonin precursor tryptophan. Or you can find 5-HTP in health food stores, which is an intermediate between tryptophan and serotonin. My wife says this makes a lot of sense.
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jamesp
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Post by jamesp on Sept 1, 2015 18:34:25 GMT -5
My Dad has had this for 20 years. It made him very weak. Bed ridden at 85, otherwise a healthy man. Misdiagnosed for several years, lumped into fibro category. 10-20 mg Pregnasone (steroid)/day is mandatory. Rash is about always a symptom. Sorry for you and dear wife 1dave. Dermatomyositis (dur-muh-toe-my-uh-SY-tis) is an uncommon inflammatory disease marked by muscle weakness and a distinctive skin rash. Dermatomyositis affects adults and children alike. In adults, dermatomyositis usually occurs from the late 40s to early 60s. In children, the disease most often appears between 5 and 15 years of age. Dermatomyositis affects more females than males. There's no cure for dermatomyositis, but periods of remission — when symptoms improve spontaneously — may occur. Treatment can clear the skin rash and help you regain muscle strength and function.
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Deleted
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Post by Deleted on Sept 2, 2015 6:19:04 GMT -5
Not good when about all you can do is hope it does not get worse. Hopefully she can find something that will at least make it ease up. Jim
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Post by paulshiroma on Sept 2, 2015 23:12:34 GMT -5
I'm sorry to hear about your wife. My thoughts and prayer to you and yours. 30 years ... wow.
My sister has fibromyalgia combined with lupus, neuropathy and pancreatitis. Makes things hard for her and her husband.
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